CancerCare (www.cancercare.org)
A national organization providing comprehensive support info for patients with
cancer and their families/caregivers. Includes toll-free counseling line offering
one-on-one counseling over the phone.
Choice in Dying (www.choices.org)
Provides info about advance directives.
GriefNet (www.griefnet.org)
A comprehensive gateway to bereavement and grief-related resources on the
Web, including a support community for people dealing with death, grief, and
major loss, including life-threatening and chronic illness.
Med Help (www.medhelp.org)
A non-profit organization founded to assist those in need of medical info written
in non-technical terminology.
National Family Caregivers Association (www.nfcacares.org)
A membership organization that supports the family members of persons with
chronic or life-threatening illness/disability. Provides info, support, resource
referrals, public awareness and advocacy in an effort to increase the caregiver's
quality of life. Also offers bereavement program.
Volunteer Resource Network (
www.growthhouse.org/hospice/vhn.html)
An affinity group of more than 150 volunteer organizations in the US that
provide a wide variety of free services to the terminally ill, their families, and
those who are grieving. Members include volunteer hospices, grief support
programs, and many others.
American Pain Foundation (www.painfoundation.org)
A grassroots, consumer driven, patient-focused organization dedicated
to promoting better pain management by providing practical information
for patients, raising public awareness and understanding of pain, and
advocating against barriers to effective treatment.
Americans for Better Care of the Dying (www.abcd-caring.org)
A non-profit charity dedicated to social, professional, and policy
reform/education aimed at improving services for patients and their families.
Goal is to enhance experience of the last phase of life for all Americans;
improve communication between providers and patients; and control pain and other symptoms.
Association for Death Education and Counseling (www.adec.org)
Dedicated to improving the quality of death education and death-related
counseling and caregiving. Provides information, support, and resources
to its multicultural membership, and through them, to the public.
Bereavement and Hospice Support Netline (www.ubalt.edu/www/bereavement)
Web page listing bereavement and support group. Lists services state by state.
Provides eleven different bereavement group types.
Center to Advance Palliative Care (www.capcmssm.org)
Established by the Robert Wood Johnson Foundation to promote wider access
to excellent palliative care in hospice and health systems nationwide.
Collaborates with the American Hospital Association, National Hospice
and Palliative Care Organization, and American Academy of Hospice and Palliative Medicine.
Center to Improve Care of the Dying (www.medicaring.org)
A unique interdisciplinary organization committed to research, education,
and advocacy to improve care of dying patients. Incorporates experience
from social services, humanities, law, epidemiology, health services, research, and ethics.
Dying Well (www.dyingwell.org)
Resources and referrals to organizations, Web sites, and books to
empower persons with life-threatening illnesses and their families.
Education for Physicians on End of Life Care (www.epec.net)
Educates physicians through its core curriculum, on essential clinical
competencies required to provide quality end of life care.
End of Life Nursing Education Consortium (
www.aacn.nche.edu/elnec)
A comprehensive national education program to develop a core of expert nursing
educators and to coordinate national nursing efforts in end of life care.
Georgia Collaborative to Improve End of Life Care (
www.gaeolcare.org)
An organization dedicated to increase community awareness of planning for final
healthcare; motivating individuals to plan for their final healthcare by discussing
and documenting wishes. Established an extensive partnership with hospitals,
medical associations, insurance companies and nursing/medical schools.
Growth House, Inc. (www.growthhouse.org)
Mission is to improve the quality of compassionate care for the dying, through
published education about hospice, palliative care, pain management, death with
dignity, bereavement, and related issues. Offers free monthly e-mail newsletters.
Hospice Foundation of America (
www.hospicefoundation.org)
Provides leadership in the development and application of hospice and its
philosophy of care with the goal of enhancing the American healthcare system
and the role of hospice within it.
Last Acts (www.lastacts.org)
A nationwide campaign dedicated to improving end of life care through the
sharing of ideas and resources by professionals and individuals. The goal is
to bring death-related issues out in the open and help individuals and
organizations pursue better ways to care for the dying.
National Hospice and Palliative Care Organization (www.nhpco.org)
The largest nonprofit membership organization representing hospice and
palliative care programs and professionals in the US. The organization is
committed to improving end of life care and expanding access to hospice
care with the goal of profoundly enhancing quality of life for the dying and
their loved ones.
Partnership for Caring (
www.partnershipforcaring.org)
National non-profit organization devoted to raising consumer expectations
and demand for excellent end of life care. Offers resources for talking
about end of life choices.
Supportive Care of the Dying (www.careofdying.org)
Develops and tests innovative projects with individuals and organizations
working to improve delivery of care to those facing the end of life. Videos
and facilitator guides are available to help improve physician communication
with patients and families.
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